Parents of infants who are high risk of developing cerebral palsy now have a way to screen their babies at home for cerebral palsy. A new phone app, created by Royal Women’s …
Little Agnese was born with oxygen deprivation which resulted in her developing cerebral palsy. Her family is now hoping to raise funds for modifications that will make her life a bit easier.
The 7-year-old Massachusetts girl has a severe form of cerebral palsy which affects her ability to walk, talk, and move around. She uses a wheelchair to get to and from school, and to and from her family’s upstairs apartment unit. Her parents spend everyday caring for her day in and out, and the expenses, according to the family, are overwhelming. Agnese’s father works outside of the home, and her mother stays home to care for, but with just one income, finances are extremely tight.
There are a few things that would make a world of difference in this family’s life, but the costs to get these items are out of their budget. They’re seeking means to obtain a handicap accessible van and accommodations for their apartment that would make life easier for Agnese.
The child’s teacher, Judy Araujo, told Cerebral Palsy Guidance that she put together a GoFundMe fundraiser to help the family, but since they’re isolated due to round-the-clock care for Agnese, there haven’t been a lot of donations so far.
“I am a teacher and a friend of the family ~ they came to me for help and suggestions. I posted the Go Fund Me on my website: Click here. You can view it there! The Go Fund Me has been up for nearly a month. Unfortunately, this family, due to the child’s condition, is very isolated so they aren’t getting many donations. The mom cares for the child around the clock so there is a HUGE financial need with only the dad working. I feel very badly for the situation. They are incredible people.”
Agnese, unfortunately, suffers from numerous limitations, which include:
– Relies on a wheelchair for movement
– Has no muscle control
– Has no communication skills
– Has no control of bladder/bowel control
– Needs to be fed by her caregivers
– She is legally blind
– She has overactive hearing
– She takes a list of medications
– She has frequent seizures
According to the family’s official GoFundMe page, the family’s apartment building has no elevator. They have to carry the little girl and her wheelchair up and down stairs, to and from a third story apartment each day. There are currently no modifications in place at her elementary school in Waltham, and according to a family member who created the GoFundMe page, the family owns a small car and they have troubles getting Agnese’s wheelchair in and out of the vehicle each day.
“It is difficult getting her inside and out of a normal car, therefore, a wheelchair accessible van will make it that much easier.”
Click here to donate and help this little girl and her family out. No amount is too small!