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Sleep issues are common in children with cerebral palsy. There are a number of reasons for this that vary by child. Identifying the underlying cause is an important step in developing a treatment plan to improve sleep quality as much as possible.
What Are Sleep Issues?
Sleep issues can include impairments in the quality and duration of sleep, as well as trouble initiating sleep in the first place. Children with mild sleep disorders can usually regulate their sleep patterns over time. Still, other sleep disorders are so serious that they can interfere with many aspects of a child’s life. These include learning, mental functioning, emotional regulation, and social functioning.
Between 23% to 46% (depending on the study) of children with cerebral palsy suffer from sleep problems, which is a much higher average than children who aren’t disabled (20% have sleep issues).
According to a “Sleep Medicine” study published by a team of physicians that studied sleep patterns in children with CP, over 40% of children with cerebral palsy had an abnormal sleep pattern score.
Sleep issues can arise from disrupted melatonin secretion, “sleep-breathing” disorders, involuntary teeth grinding, excessive daytime sleeping, and nightmares.
Sleep issues not only affect the child’s development but also causes a disturbance within the entire family. Close to 40% of children with cerebral palsy require attention from parents or caregivers at least once a night, almost every night. This can result in parents having issues concentrating and functioning the following day.
Children with Cerebral Palsy: Common Reasons for Sleep Disorders
Drooling is a common problem for children with cerebral palsy, and unfortunately, it’s an associated condition that can also disturb sleep. Excessive drooling can result in children having difficulties breathing while trying to sleep and choking on excessive saliva.
Depending on the child’s weight, ability to change sleep positions, and muscle tone of the throat and airways, obstructive sleep apnea can also be an issue.
Gastroesophageal Reflux Disorder (GERD)
According to a study performed by the University of Alberta’s Faculty of Rehabilitation Medicine, there is a high incidence of children with cerebral palsy developing GERD. This digestive disorder affects the lower esophagus. Symptoms include:
- Difficulty swallowing
- A burning sensation in the chest area
- Sore throat
- Hoarse voice
- Acid reflux
Around 80%–90% of children with severe cerebral palsy will develop GERD or other similar gastrointestinal issues. GERD symptoms worsen when lying flat, making sleeping difficult or impossible due to epigastric pain and discomfort.
Body pain is one of the most common side effects of cerebral palsy. Muscle spasms, involuntary muscle movement, abnormal posture, and spasticity are among a few of the reasons that pain is so prevalent.
Pain can hinder anyone from getting rest, but more so for people with cerebral palsy, who may not be able to maneuver themselves properly to alleviate muscle and body pain. In a study conducted by Breau and Camfield, results indicated that kids who suffered from pain also had more overall sleep issues, night wakings, parasomnias, sleep-disordered breathing, and shorter sleep duration.
Alex, a blogger at Cerebral Palsy Guidance, who was diagnosed with CP at the age of two, stated that sleep problems have followed him into adulthood, mainly due to stiff muscle pain.
“I find that unless I am extremely relaxed, I can’t get comfy in bed because my back and shoulder muscles feel tense. It sometimes takes me 20 minutes between lights out (usually 10:30 p.m. M-F) until I drift off to Dreamland. And turning from one side to another is not easy, either. If I’m only half-asleep, turning over hurts, and I wake up.”
Respiratory problems generally come from associated conditions such as drooling and GERD. These problems can make it extremely difficult for children with cerebral palsy to stay asleep through the night. If not treated, respiratory issues can lead to aspiration pneumonia, lung injuries, and even chronic lung disease.
Skin ulcers occur more often in children who depend on a wheelchair or similar aids. Pressure and skin ulcers result from a lack of blood supply to the affected parts of the body, which may be the legs, backs, arms, or any other part that’s constantly rubbing against something (such as the back is against the seat of a wheelchair for long periods of time).
Skin ulcers are often painful, and if left untreated, they can become life-threatening.
Digestive problems, particularly constipation, frequently occur in people with cerebral palsy. Several factors can cause constipation, including reduced mobility, insufficient fluid intake, weak stomach muscles, and certain medications. Abdominal discomfort and bloating can disrupt quality sleep.
Noise is a major risk factor that influences the quality of sleep children with CP will have, as a number of kids have noise sensitivities. Noises that others make in the home, such as running a dishwasher, conversations, or vacuuming, can be detrimental to kids with cerebral palsy who have sensitive ears.
The effects that sounds and noise have on sleeping may result in a delay in sleep onset, difficulties moving into the deeper stages of sleep, waking up more frequently, restlessness, and an overall shorter total sleep time.
Children with cerebral palsy who’re affected by sounds while trying to sleep are at risk of developing other physical and emotional health problems due to constant lack of sleep.
Seizures are another common associated symptom of cerebral palsy. Some kids with cerebral palsy and seizures have no problems sleeping through the night, whereas others have “triggers” that can set off seizures, such as lack of sleep.
In many situations, children who experience seizures likely have irregular sleep patterns, as they can happen at any time, night or day. This disrupts sleep, leading to exhaustion, which then triggers more seizures.
Facts to Remember and Initial Treatment Options
- Sleep issues are common in children without cerebral palsy but much more common in children with the disorder.
- Sleep issues affect not only children but also parents and other family members.
- Sleep hygiene, such as maintaining a dark, quiet environment and limiting screens 60 minutes before bedtime, is typically the first-line treatment to help sleep issues.
- Melatonin may be effective in helping children fall asleep, but it may not improve the quality or duration of sleep.
- Other medications, such as sedatives and hypnotics, are available for children with sleep issues; however, further research trials are needed to assess their efficacy and safety.
It’s important to speak with your child’s healthcare provider if you suspect any sleep issues. In most cases, the sleep issues are mild, but you should always talk with your child’s doctor to rule out other, more serious sleep problems.
- Sleep disorders in children with cerebral palsy: neurodevelopmental and behavioral correlates. (n.d.). ScienceDirect.com
Retrieved from: https://www.sciencedirect.com/science/article/abs/pii/S1389945713012057
- Sleep and Children with Cerebral Palsy: A Review of Current Evidence and Environmental Non-Pharmacological Interventions. (2015, February 27). MDPI.
Retrieved from: https://www.mdpi.com/2227-9067/2/1/78/htm
- Mandal, MD, A. (2019, May 14). Causes and risk factors of pressure ulcers (bedsores). News-Medical.net.
Retrieved from: https://www.news-medical.net/health/Causes-and-risk-factors-of-pressure-ulcers-(bedsores).aspx