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Cerebral palsy financial assistance is crucial for many families because this is a lifelong condition with significant expenses. The government offers numerous forms of aid that can help your child get care and assistive devices. Some families can also take legal action to seek compensation.
Supplemental Security Income
Supplemental Security Income (SSI) is a form of financial assistance for people with disabilities and limited income.[1] It is provided by the government. SSI is different from other types of government financial aid in that the United States Treasury funds it. This allows recipients to receive SSI funds without the work credit requirement.
There are also drawbacks to SSI. For instance, although recipients aren’t required to have work credits, the amount of compensation allowed each month tends to be lower than other forms of government financial assistance.
To qualify for SSI, you must be a legal resident of the United States, and you must demonstrate your child’s disabilities, whether mental, physical, or both. Furthermore, you must also provide medical documentation regarding your child’s cerebral palsy, and you must have only a limited amount of assets and funds.
For an application to SSI, contact your local Social Security office. If you would rather have the form mailed, call the Social Security office directly at 800-772-1213.
Social Security Disability Insurance
Social Security Disability Insurance (SSDI) are disability payments for people unable to work because of physical or mental limitations gainfully. Unlike SSI, SSDI is funded by payroll taxes of people who work in the nation.
SSDI can be a monthly benefit or a permanent one. Although cerebral palsy is a lifelong condition, it doesn’t always mean that SSDI will be permanent because many children with cerebral palsy will grow up and eventually find employment.
To qualify for SSDI, the applicant must show proof of mental or physical disability that has lasted at least one year and show that the parent or parents (if applying for a child) paid Social Security taxes for the required period of time.[2] The applicant must also prove that there are no current training programs (for adult applicants) they qualify for.
To apply for SSDI, visit your local Social Security office or call 800-772-1213 to have an application mailed to you. Keep in mind that you’ll need to show proof of residency, your child’s birth certificate, past medical bills, and the names or numbers of any physicians who can help prove your child’s disability.
Children’s Health Insurance Program
CHIP is part of Medicaid and offers health coverage to eligible children. It is administered through states according to federal government requirements. Nearly 10 million children are enrolled in and benefit from CHIP.
Contact Medicaid and CHIP to find out if your child qualifies and to apply for enrollment. Criteria for enrollment vary by state.
Temporary Assistance for Needy Families
Temporary Assistance for Needy Families (TANF) is a grant program that provides temporary compensation for families in need. Although a child with cerebral palsy isn’t a requirement to qualify, TANF can help families with children with disabilities as long as specific guidelines are met, including:
- Unemployed but seeking employment
- Participation in job training
- Actively seek employment
- Meet income guidelines
Each state has its own set of requirements that must be satisfied before granting TANF.[3] The guidelines above, as well as additional ones, may be required.
The amount of assistance you and your family may be entitled to and for how long will also vary from state to state. For example, some states only allow recipients to receive TANF for a few years, whereas another country may allow four or more years. Further, the amount you are entitled to in one state may differ from the amount you are entitled to in another country.
You can apply for TANF at your city’s health department or the Department of Social Services, known as the Department of Family and Children’s Services or the Department of Human Services.
Lawsuits and Financial Assistance
If the negligence of medical professionals caused your child’s cerebral palsy, you have the legal right to file for damages against the responsible party.
Medical negligence can occur in many different ways, but the most common reasons that medical mistakes lead to a child developing cerebral palsy include:
- Failure to schedule and carry out an emergency C-section in time
- Improper use of birth-assisting tools during delivery, such as forceps or a vacuum extraction tool
- Failure to detect, diagnose, and treat infant jaundice
- Failure to detect, diagnose, and treat low blood sugar
- Failure to detect, diagnose, and treat maternal preeclampsia
- Administering too much medication or the wrong kind of medication during delivery
- Failure to monitor fetal distress and infant heart rate
If medical negligence is proven, parents or guardians of the child with cerebral palsy can receive financial compensation to help care for the child’s medical needs, including past expenses, as well as the expected cost of future costs.
Some states also allow punitive damages if your cerebral palsy lawsuit is successful. Punitive damages award the plaintiff compensation in addition to the actual costs to pay for physical pain and suffering, emotional stress, and more. Contact an experienced cerebral palsy lawyer for more information.
Aging and Disability Resource Assistance
While the Aging and Disability Resources Centers (ADRC) will not help your child until they are an adult, it’s an excellent organization for elderly adults and people over 18 who live with cerebral palsy.[4]
ADRC assists people with disabilities to find services:
- Financial planning and assistance
- Legal representation
- Job training and job search assistance
- Housing assistance
- Transportation
- Medical and dental assistants
- Prescription medication coverage
- Mental health counseling services
- Home care assistance and more
Each state has its own assistance options when helping adults with cerebral palsy. For more information, use the ADRC state locator tool to be taken to your state’s organization.
Charitable Organizations for Cerebral Palsy Assistance
Some charities provide resources for children with disabilities and their families. Some help navigate aid applications or legal actions. Others provide access to grants, adaptive and assistive equipment, or educational opportunities.
United Cerebral Palsy has locations all over the U.S. offering therapy, day programs, vocational training, and more. The Children’s Hemiplegia and Stroke Association offers access to resources like scholarships and support groups.
If your child has been diagnosed with cerebral palsy, resources are available. Reach out to organizations and government groups that provide access to funds and other resources.
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- The United States Social Security Administration. (n.d.). Supplemental Security Income (SSI).
Retrieved from: https://www.ssa.gov/ssi/ - The United States Social Security Administration. (n.d.). Benefits for People with Disabilities.
Retrieved from: https://www.ssa.gov/disability/ - Benefits.gov. (n.d.). Temporary Assistance for Needy Families.
Retrieved from: https://www.benefits.gov/benefit/613 - Administration for COmmunity Living. (n.d.). Aging and Disability Resource Centers.
Retrieved from: https://acl.gov/programs/aging-and-disability-networks/aging-and-disability-resource-centers