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Cerebral palsy, like many other lifelong disorders, can get quite costly. Many parents are unprepared for the expenses of raising a child with cerebral palsy. Cerebral palsy government assistance can help qualified families offset the costs.
Cerebral Palsy Cash Assistance
The U.S. government has several programs available to needy families with special needs children, which help with temporary needs and long-term health support.
However, to qualify for cash assistance, the family must meet specific guidelines, which vary according to your state. In general, cash assistance is available to families who meet the government’s income thresholds.
Generally, cash assistance from the government is reserved for low-income families. When children with cerebral palsy grow older and have work limitations may also be able to receive their own cash assistance.
Contact your local health and human services department for more information on how to apply and what you may be eligible for.
Keep in mind that you will have to go through a strict application process and provide proof of income. It is a long process, but you’ll receive cash assistance that can significantly help your family if you qualify.
Social Security
Under section 111.000 of the Social Security Disability Evaluation, children with cerebral palsy who have motor dysfunction qualify for social security benefits.[1]
However, to get social security benefits for your child, it’s important to be prepared for the process. Children with severe motor disabilities are generally automatically approved for social security benefits as long as they have medical documentation.
For children with minor motor disabilities, the requirements are more stringent. Parents may need to show additional documentation that proves the child’s impairment. The Social Security Administration will give you a detailed list of requirements.
Other forms of disorders that will help qualify your child for Social Security cash assistance include:
- Seizure disorders
- An IQ of less than 70
- Severe communication problems
- Severe emotional problems and disorders
Once you’ve applied for social security benefits and the application is approved, you can expect a set amount of cash assistance each month.
In addition to cash assistance, social security benefits may also include insurance. Social security insurance is designed for people who have physical or developmental disabilities that affect their ability to work.
Although some children with cerebral palsy will grow up and find gainful employment without the need for assistance, others may have limited abilities that allow them to obtain insurance.
Social security can also provide Supplemental Security Income (SSI), which helps people with disabilities with things such as house payments, living costs, heating and energy bills, and general miscellaneous expenses.
Educational Assistance
Some children with cerebral palsy will require special education assistance while in public school to ensure they obtain a quality education. The Individuals with Disabilities Act of 2004 was designed so that children can receive an individualized education that suits their individual needs.[2]
There are numerous different types of educational plans that can assist children with their individualized needs, including:
- Individualized Family Service Plans (IFSP)
- Individualized Education Program (IEP)
- Individualized Education Evaluation (IEE)
- Individualized Health Plan (IHP)
- Individualized Transition Plan (ITP)
For in-depth information on each plan, as well as more details on educational assistance, refer to our article Cerebral Palsy Educational Assistance.
Assistance from Disability Organizations
Many disability organizations offer assistance to those with cerebral palsy and numerous other disabilities, including the following:
- United Cerebral Palsy Association
- International Cerebral Palsy Society
- Easter Seals
- Cerebral Palsy Foundation
- March of Dimes
Each organization offers a unique range of assistance, including therapy, summer camps, fundraisers for awareness, and more.
The United Cerebral Palsy is one of the largest organizations and most prominent advocates for people with cerebral palsy in the United States. For additional information, refer to our article United Cerebral Palsy.
Child Care Assistance
When the word child care comes up, people tend to think of daycare centers where numerous children are watched and supervised while parents are at work.
Although that is one aspect of child care, some parents may opt to have a babysitter who works with children with cerebral palsy in their home. Both types of child care have benefits and cons.
Children attending a daycare center will have numerous other children to play with, as well as planned activities that can be done in groups. Children are typically broken into groups by age, starting at infancy throughout the maximum age that the daycare center allows.
In-home care allows children to have more one-on-one time with caregivers, as well as feel more comfortable as they are in their own homes. Many parents who have children with cerebral palsy find home care services easier for the child due to one-on-one attention in a comfortable, well-known environment.
However, sometimes in-home care with a caregiver who specializes in caring for children with cerebral palsy can be more expensive when compared to daycare centers.
Child care costs continue to soar, increasing faster than many families can afford, especially families with children who have cerebral palsy and already require many additional medical and therapy services.
Fortunately, some families may qualify for government-assisted childcare. Under the Americans With Disabilities Act (ADA), the chosen daycares must provide the proper caregiving and accommodations to meet each child’s needs.[3]
In order to qualify for government child care needs, the most common way is to apply for Temporary Assistance to Needy Families (TANF).
TANF allows 30% of your state’s allocations to be spent directly on child care.[4] In other words, if you apply and are accepted into the TANF program, you can receive additional funds to be used only for child care.
In addition to TANF, the Child Care Subsidy Program (CCRC) provides free childcare services to needy families who meet the following qualifications:
- Parents must meet the income requirement (low-income)
- Parents must attend school or work at least 20 hours per week.
Keep in mind that these qualifications may vary depending on your state. Be certain to contact your local Department of Social Services for more information.
CCRC is open to children 13 years of age or younger or children of any age who live with a disability. Once you apply to the program, you’ll need to complete an enrollment process and choose a qualifying child care center.
Afterward, CCRC reimburses the child care provider. However, reimbursement rates may vary by state.
Other Child Care Assistance Options
In many states, non-profit agencies can help out financially with child care bills. Some agencies specifically help children with cerebral palsy or other disabilities. For information, contact your local Department of Health and Human Services.
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- Disability Evaluation Under Social Security. (n.d.). The United States Social Security Administration.
Retrieved from: https://www.ssa.gov/disability/professionals/bluebook/ - Individuals with Disabilities Education Act (IDEA). (n.d.). Individuals with Disabilities Education Act.
Retrieved from: https://sites.ed.gov/idea/ - Get Help Paying For Child Care. (n.d.). Childcare.gov. Administration for Children & Families.
Retrieved from: https://www.childcare.gov/consumer-education/get-help-paying-for-child-care - States Should Invest More of Their TANF Dollars in Basic Assistance for Families. (2020, February 25). Center on Budget and Policy Priorities.
Retrieved from: https://www.cbpp.org/research/family-income-support/states-should-invest-more-of-their-tanf-dollars-in-basic-assistance