Hearing the news that you have a child with cerebral palsy can be overbearing, as the day-to-day care and worries state, there may be times you’ll need to reach out to others for support. Fortunately, there are numerous avenues you can take to get the help you need.
Support from Family and Friends
One of the most obvious choices when looking for support is to reach out to family and friends. Whether venting frustrations over the phone or visiting family and friends in person to share your daily joys and/or complaints, support by people you know and trust can be invaluable.
It’s highly recommended that you try to help your family and friends learn as much about cerebral palsy as you can. Education is the key to better understanding such a complex disorder. Learning together can also help bring you closer to your family and friends.
Cerebral Palsy Organizations
Cerebral is the most common type of childhood motor disability, and in turn, numerous organizations have been created to help with support, learning, and many other assistance options.
For instance, United Cerebral Palsy (UCP) is a popular organization that not only advocates for people with cerebral palsy, but also provides support services for caregivers, parents, loved ones, and more.
Other popular organizations that can help provided needed support and resources include the Cerebral Palsy Family Network and the Cerebral Palsy Support Network.
Online Support Groups
Don’t count out people you haven’t met yet when it comes to cerebral palsy support. There are many parents and guardians across the world that you may have never met, but are going through similar situations.
Cerebral palsy online support groups give you the opportunity to branch out and get additional support in the comfort of your own home. Social networks that connect people with similar interests and experiences and becoming especially popular. In fact, many of the popular cerebral palsy organizations now how Facebook pages set up for people to support each other and learn more information about cerebral palsy.
Other online support groups have created their own websites for parents and loved ones to join. For example, Daily Strength is a website dedicated to offering free support to anyone who needs it. If you want to remain anonymous, there are options in which you can ask questions and vent frustrations without revealing your identity. In addition, physicians are on hand to answer pertinent medical questions.
Support can also come in forms of reading others’ journeys via blogs. Numerous parents have started their own blogs that detail the daily hardships and joys of caring for child with cerebral palsy. Often times, these blogs leave the comment section open to give others the opportunity to share their own experiences, but some people feel comfort in simply reading about the lives of others that are so similar to their own.
Although community fundraisers are generally designed to bring awareness to cerebral palsy while raising money, many people find a wealth of support while attending these types of events. Parents and loved ones will generally find others that are not only going through similar issues, but also live in the same community. Not only will you find support, but you may also find new friends and new playmates for your child.
Check with cerebral palsy organizations (such as the ones listed above) to find out about community fundraisers going on in your area.